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Breakthrough In Caregiver Support For Rare Dementia FTD

Filed under: Alzheimers Disease — admin at 6:01 pm on Tuesday, September 30, 2008 Edit This

Breakthrough In Caregiver Support For Rare Dementia FTD
The FTD Support Forum (ftdsupportforum.com) has just registered it’s 1000th new member world-wide since being established 9 months ago. This on line support group’s mission is to provide a place for safe and secure communications for people who have been diagnosed with FTD and those who care for loved ones with FTD. Members are dedicated to supporting one another in a sensitive, respectful and sincere manner.

Review of Issue: Management Strategies, Medical Issues, and Pathobiology

Review of Issue: Treatment Strategies, Early Disease Detection, and Insulin Metabolism

Consensus Statement on Genetic Research in Dementia

In this article, the authors describe how the European Dementia Consensus Network developed a consensus on research ethics in dementia, taking into account the questions posed by the era of genetic research and its new research methods. The consensus process started with a Delphi procedure to analyze relevant stakeholders’ positions by describing their statements on the possibilities and limitations of research into genetic determinants of Alzheimer disease and to describe and analyze the moral desirability of genetic research on Alzheimer disease. The conclusions drawn from the Delphi procedure fuelled the development of the consensus statement, which is presented in this paper. The consensus statement aims to stimulate ethically acceptable research in the field of dementia and the protection of vulnerable elderly patients with dementia from application of inadequate research methods or designs.

Revising the ADAS-cog for a More Accurate Assessment of Cognitive Impairment.

Page: 236
DOI: 10.1097/WAD.0b013e318174f8b9
Authors: Wouters, Hans MSc *; van Gool, Willem A. MD, PhD +; Schmand, Ben PhD + ++; Lindeboom, Robert PhD *

Alzheimer’s Society Comment On The 18 Million Pounds Injection Into Health Research, Announced By The Department Of Health Today
Today’s investment into dementia research is extremely welcome. Dementia research is drastically under funded in the UK. Today’s investment into dementia research is extremely welcome. Dementia research is drastically under funded in the UK. Only 11 is spent on dementia research per person with the condition in the UK, compared to 289 per person with cancer. However, dementia currently costs the UK 17 billion a year and there is no cure on the horizon.

Decision-Making Involvement Scale for Individuals With Dementia and Family Caregivers

This report describes the development and preliminary psychometric properties of the Decision-Making Involvement Scale for individuals with dementia and family caregivers. Data were collected from 217 individuals with dementia and their respective caregivers. Principal axis factor analysis, Kendall , and Pearson correlations were used to determine the Decision-Making Involvement Scale’s psychometric properties, mean differences of caregiver and individual with dementia, and the relationship between scores of Decision-Making Involvement Scale and measures of well-being. Analyses support a reliable, 1-factor solution of the Decision-Making Involvement Scale for both individuals with dementia and caregivers. Socio-demographic, impairment, and well-being variables are differentially related to the perceptions of how involved the individual with dementia is in decision making. The Decision-Making Involvement Scale provides useful information about daily decision making of an individual with dementia, and it shows promise as a means for understanding the relationship between decision-making involvement and well-being of individuals with dementia and caregivers.

Early Onset Familial Alzheimer Disease With Spastic Paraparesis, Dysarthria, and Seizures and N135S Mutation in PSEN1.

Page: 299
DOI: 10.1097/WAD.0b013e3181732399
Authors: Rudzinski, Leslie A. MD *; Fletcher, Rita M. RN *; Dickson, Dennis W. MD + ++; Crook, Richard BSc ++; Hutton, Michael L. PhD ++; Adamson, Jennifer BS ++; Graff-Radford, Neill R. MBBCh, FRCP *

Factors Associated With Skilled Nursing Facility Transfers in Dementia-specific Assisted Living.

Page: 255
DOI: 10.1097/WAD.0b013e31816c92d5
Authors: Kenny, Anne M. MD *; Bellantonio, Sandra MD +; Fortinsky, Richard H. PhD *; Dauser, Deborah MPH ++; Kleppinger, Alison MS *; Robison, Julie PhD *; Gruman, Cynthia PhD [S]; Trella, Patricia MS *; Walsh, Stephen J. ScD ++

Panax Ginseng Enhances Cognitive Performance in Alzheimer Disease.

Page: 222
DOI: 10.1097/WAD.0b013e31816c92e6
Authors: Lee, Soon-Tae MD * + ++; Chu, Kon MD, PhD * +; Sim, Ji-Young BS *; Heo, Jae-Hyeok MD [P]; Kim, Manho MD, PhD * +

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